Evaluation of the quality of life in persons with autism

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Evaluation of the quality of life in persons with autism

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Title: Evaluation of the quality of life in persons with autism
Author: Cuesta Gómez, José Luis; Fuente Anuncibay, Raquel de la; Santamaría Conde, Rosa María
Abstract: La búsqueda de una mejor calidad de vida y la tendencia hacia la mejora continua se han convertido hoy en día en modelo de referencia en las organizaciones sociales. Estos logros permiten encontrar la coherencia y desarrollar prácticas basadas en la comprensión y consideración de la persona como centro de toda actuación. El apoyo ofrecido a las personas con Trastornos del Espectro Autista (TEA) no se he visto afectado por este concepto de calidad, debido a las serias dificultades asociadas a este trastorno y que afectan a las áreas principales del desarrollo personal, lo que requiere que las organizaciones proporcionen herramientas y recursos que garanticen la calidad de los servicios de apoyo. Para ello se ha seguido una metodología basada en el diseño y validación de la Guía de Indicadores de Calidad de vida, que consta de 68 indicadores agrupados en 6 áreas. Esta herramienta es un intento de dotar de un marco de referencia a las organizaciones que lo deseen, para luchar con el problema de la calidad de vida, y asumir los avances en nuevas formas de enriquecer la asistencia para las personas con TEA.The search for quality of life and the trend towards continual improvement has today become a true reference which guides most social organizations. This achievement allows us to find coherence and to bring together practices based on an understanding and on the consideration of the person as the centre of all actions. The support offered to persons with autism spectrum disorders (ASD) have not been affected by this concept of quality, due to the serious difficulties associated with this disorder and that affect the main areas of personal development. This requires that organizations provides tools and resources to ensure the quality of support services. The resulting Guide of Indicators for Quality of Life, following a process of validation, is an evaluation instrument from an objective perspective. The instrument is made up of 68 indicators grouped into 6 areas. This tool is an attempt to bring a reference frame for those organizations that want to grapple with the challenge of introducing quality of life based models and as an incentive for all those who take on the challenge and hope for advances towards new ways of enriching the quality of support for persons with ASD.
URI: http://hdl.handle.net/10662/2758
Date: 2012


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